Patient Advocate for Autoimmune Disease

Work with Charlotte.

You shouldn't have to be the project manager of your own fragmented healthcare system while you're sick.

Pursuing Board Certified Patient Advocate (BCPA) certification (results expected November 2026)

Intake form coming soon.

Charlotte McGinn
Charlotte McGinnPatient advocate · Autoimmune patient

Because living with autoimmune disease shouldn’t come with a second job: managing your healthcare. Autoimmune disease already causes fatigue, pain, and many other symptoms that make it difficult to function in your life. Extra mental load shouldn’t be on that list.

Autoimmune care can keep changing long after diagnosis. Symptoms may persist, treatments may take months to work—or may not work well enough—and important concerns can remain unresolved without a clear next step. Treatment changes can also mean new specialists, labs, appointments, and logistics to manage.

Dealing with specialty pharmacies, infusion centers, insurance companies, and copay programs adds another layer of coordination to your care. You become the project manager of a large, complex system where no one seems to talk to each other.

Think of a patient advocate as a project manager and second set of eyes for your healthcare. They can help you organize your medical history, prepare for appointments, coordinate between providers, navigate insurance and medication logistics, and follow up on all the loose ends that otherwise fall back on you.

An advocate doesn't replace your doctors or make medical decisions for you. We help you get the information, coordination, and support you need to make those decisions with your care team.

In 2023, I was diagnosed with reactive arthritis. When my symptoms didn’t resolve, that diagnosis evolved into undifferentiated spondyloarthritis and eventually Crohn’s disease with enteropathic arthritis.

I know what it's like for autoimmune care to keep changing and what it's like when care gets stuck. I spent months on treatments that weren’t working, continued to have symptoms that didn’t always show up in routine bloodwork, and had to keep pushing when important concerns still felt unresolved.

Along the way, I’ve coordinated across specialists, pushed my doctors when they didn't give me clear answers, and even escalated a six-month specialist wait to two weeks after a hospitalization. I now work with people who already have an autoimmune diagnosis and need help managing what happens next, whether that’s a treatment change, multiple specialists, or care that has hit a wall.

I’m also a software engineer and a 200-hour certified yoga teacher. Engineering taught me how to debug complex systems, trace problems across interconnected parts, and identify what’s missing or unresolved. I bring that same systems-thinking approach to complex care across symptoms, specialists, treatments, and logistics, while yoga shaped how I think about supporting the whole person, not just managing medical tasks.

My mission is to give autoimmune patients the support I wish I’d had: someone in their corner who understands both the disease burden and the work of navigating the healthcare system.

Read more about my story. (opens in a new tab)

How I can help

Practical support with the moving pieces of your care.

Get organized after a new or changing diagnosis

Turn scattered records, appointments, medications, referrals, and next steps into one clear plan so you know what needs to happen and when.

Coordinate care across specialists

Keep track of what each clinician is recommending, get records and relevant information to the right providers, follow up on outstanding referrals or next steps, and make sure everyone has the information they need.

Keep treatment and medication logistics on track

Help coordinate the operational side of treatment changes: medication schedules, prednisone tapers, biologic loading doses, labs, infusion appointments, and specialty-pharmacy deliveries. I can call and follow up with specialty pharmacies, infusion centers, and your care team to help make sure medications are ordered, scheduled, and delivered when you need them.

Strategize a path forward when your care feels stuck

If treatment isn’t working well enough or important symptoms still feel unresolved, I can help you organize what’s happening, document patterns and treatment response, identify questions to bring back to your care team, and pursue second opinions or additional specialist input. I won’t diagnose you or choose treatment for you, but I can help keep unresolved concerns moving forward.

Prepare for appointments

Organize your history, priorities, questions, and recent changes ahead of appointments so you can use limited time with your clinician effectively.

Follow through after appointments

Turn a visit into a concrete action plan and help carry it forward: scheduling labs, following up on referrals, sending records, tracking medication changes, and making sure unanswered questions don’t disappear between appointments.

Plan your life around treatment

Help you think through work, travel, exercise, rest, and other commitments around infusions, injections, medication changes, procedures, and the realities of living with autoimmune disease.

Connect you with helpful resources and community

Point you toward relevant patient communities, educational resources, support programs, and other services that can make living with autoimmune disease a little easier.

I'm currently accepting a small number of founding clients at introductory rates while I build my autoimmune patient advocacy practice.

  1. Tell me what’s going on

    Start by filling out a short intake form about your autoimmune condition, where you are in your care, and what you'd like help with. I'll review it to make sure I'm likely to be a good fit for what you need.

  2. 20-minute intro call

    $25

    If it looks like I may be able to help, we'll meet for a short call to talk through what's going on, what you'd like support with, and whether working together makes sense.

    If we decide to move forward, the $25 will be credited toward your Care Mapping Session.

    This is a short conversation about fit, rather than a full advocacy session.

  3. Care Mapping Session

    $250 · 90 minutes

    We'll spend 90 minutes getting a clear picture of your current care, what's taking up the most mental energy, and what needs attention next. Together, we'll organize your priorities and next steps and identify where additional advocacy support could be most helpful.

    Some people leave with the clarity they need to move forward on their own. If you'd like hands-on help with any of those next steps, we can decide together what you'd like me to take on at my ongoing advocacy rate.

    Hands-on follow-through is separate from the 90-minute session.

  4. Ongoing advocacy

    $150/hour

    If there's work you'd like help carrying forward, I can stay involved with things like coordinating treatment changes, preparing for and following up after appointments, managing medication logistics, and keeping care across multiple specialists organized.

    There's no requirement to continue after the Care Mapping Session. Some people may just need clarity and a plan; others may want someone alongside them as they work through it.

    Before starting, we'll agree on what you're hoping to accomplish and what you'd like me to own. Some healthcare problems depend on clinicians, pharmacies, or other organizations and can't be resolved within a guaranteed amount of time. I'll keep you informed about progress and check in with you before spending substantially more time than expected.

Intake form coming soon.